Saturday 25 May 2013

The life of Bulimia..

I never set out to be bulimic. Anorexic, yes, but I could never understand what people got from something that seemed so disgusting. Most people hate being sick, so why would you subject yourself to that on a frequent basis?

A month after I stopped eating completely I found out. Anorexia is a hard habit to acquire - it goes against all the natural bodily instincts. I was in hospital at the time and I was getting quite chuffed that I'd managed a whole month without food. Then one day, BAM! Without realizing it I had cleared the entire lunch trolley intended for the other patients. And all the rolls in the bread bin. And the biscuits in the tin too. My hunger was at last satiated but the panic and guilt that engulfed me afterwards that I would put on weight was too much to bear so I calmly walked to the toilet, closed the door and brought the lot up. Barfing on demand and the silent barf are other things that are not easy to acquire but which I perfected over the years. Many people hate vomiting. So do I. But the barf at the end of a binge is very different from when you're ill - there is no shaking, no nausea and afterwards I felt a huge buzz. Manic almost. This is caused by an electrolyte imbalance after the disgusting act. It wasn't pleasant but it solved a lot of problems. I intended to fast for as long as I could and then give in to the occasional binge when it all became too much. It didn't quite work out like that and the binges became more and more frequent. I didn't tell my doctors but I think it soon became apparent to them that I'd appear to eat normally then immediately disappear off to the toilet for an extended time. The fact that I was also losing weight rapidly was another clue.

Initially I thought bulimia was great. It is a bit mingy, but you just do it, and just imagine - you can eat ANYTHING you want and never gain any weight! Fantastic! That didn't last. Soon I began to feel a fraud..a feeling that haunted me through my entire "career" as an anorexic. People who looked at me would see an emaciated girl thinking that I didn't eat, but in reality I couldn't cope with the extreme hunger and had the guilty secret of bingeing, sometimes 20 times a day. A good day for me would be 3 binges, a typical day, 5 binges, and horrendous days had 10 binges or more.
I hated those days. By the end of them I was exhausted, my mouth raw and blistered, my sitting room resembling a rubbish dump and I was usually left with the flimsy resolve that this would be my last day as a bulimic. Of course, a few hours later I was awake and absolutely starving, counting the minutes before the shops opened, fantasizing about all the delicious things I would be eating that coming day.

My bulimia very quickly turned in to a physical addiction and at its worst, uncontrollable. It was constant. The food that I ate during a binge was the only food I ate. I didn't eat meals or snacks. My aim was to get through each day without eating at all, but that rarely happened. 
I took strange fancies for things..I relied on takeaways a lot, so often it was Indian, Chinese, Italian or the chip shop. I'd get weird cravings for binges consisting entirely of courgettes or rice or tomatoes and I've always believed that if I craved a meat dish I was anaemic or if I fancied dozens of bananas, I was lacking in potassium etc. I was well known in my local grocery stores. I visited them 2-3 times every day and I felt ashamed each time, especially if it was the same cashier.

I hated bulimia. It took me to some very dark and lonely places. It disgusted me, and I was disgusted with myself. After every binge, I would say to myself "NEVER AGAIN", but it always happened again which made me hate myself even more. I felt such a failure that I couldn't overcome it. It was like a strange beast living inside me that was impossible to satiate. Once one binge was over, I was planning the next. If I'd chucked leftover food in the kitchen bin, I'd be back in there an hour later retrieving it for my next binge. 
Payday was a day of great excitement and my binges could be a little more lavish, but by the end of the fortnight I was absolutely broke and getting by on ones that consisted solely of porridge.

I believe that I was bulimic because I was starving myself, and it disappeared almost overnight as soon as I started eating normally again. It took me a long time to realize that until I relinquished my anorexia, the bulimia would stay with me. If I was lonely, upset, or just plain bored, I'd have a binge. Long after I considered myself recovered, the terrible food cravings I had caused by PMS drove me to the occasional binge..maybe once every 3-4 months. I considered these to be crazy-girl-hormone related rather than an eating disorder. Thankfully I've not felt the need for one since my Mirtazapine withdrawal.


Bulimia and Me - some funny and not so funny stuff..

  • Bulimia got me in to serious financial debt. Over the years I wasted so much money and I really regret that. All my money went on binges. I could have traveled the world with the money I wasted. The most I spent in one day on a binge was £200, though this was rare.

  • For some strange reason, I always used to binge whilst watching the film "Titanic". I must have watched it hundreds of times and now can't bear to see it ever again! And I must also state the very sad fact that I am word perfect...I think the same also goes for "Pride and Prejudice" starring Colin Firth which is a shame as I quite liked it but now can't watch! If either of those films come on, I instantly find my mouth salivating and my fingers twitching in anticipation! It's very weird!

  • I nearly lost my life several times when I had seizures due to potassium deficiency and electrolyte imbalances. Not nice. The habit is not relevant anymore, but I can still be seen carrying tons of bananas in my bag which I always forget about. More often than not I end up with lots of stinky mush all over my stuff after they've been bashed around a bit!

  • I had an Obsessive Compulsive Disorder (OCD) in relation to my purge ritual. I won't give you all the gory details but it involved something like drinking 30 gulps of water, then jumping up and down 60 times, heave..then repeat twice more. (Maybe doing a little dance too!) If anything got in the way of this ridiculous, but oh so important ritual, I'd get very agitated and panicky that food was left in my stomach. At the next available opportunity I'd repeat the whole circus until I felt the world was at rights again.
As I'm typing this, I can't believe how hilarious the ritual sounds, but at the time I felt very restricted by it. This cleared up once I stopped being bulimic, but it gave me a harrowing insight in to the lives of those who suffer from OCD permanently, who are so restricted by their disorder that it's impossible to lead a normal life.   

  • Thank goodness for Sensodyne toothpaste! Thanks to it, I can now eat rhubarb, gooseberries, citrus fruits, chewing gum, Granny Smith apples and sour chewy sweets - hurrah!
I lost a couple of back teeth, but compared to many bulimics I've been very lucky with the condition of my gnashers. This is probably due to not having the energy to brush my teeth when I was depressed. I was warned never to brush straight after the purge as teeth are more vulnerable..

  • Sometimes I packed away so much food that I thought my stomach was going to burst. 

  • I think my tongue is dead! After years of acid regurgitation I'm not really able to taste food with the intensity that I could before. 

  • Of course, there is the famous Pizza Hut incident which I mentioned previously in The Ludicrous side of Mental Health..#001. I find it hilarious now, but back then it wasn't quite so funny!

I never could have imagined the hold/effect that bulimia would have on me. I stupidly thought it was something I could rely on occasionally when I couldn't stand the hunger anymore. It was amazing how quickly I got sucked in to it, and a very short period of time after that I realized that I was up against something that had a life of its own and which I couldn't control. 
About 2 years in to my eating disorders, I was treated as an outpatient at a specialist clinic, but after a couple of years they told me there was nothing they could do to help me.
Some people disagree, but I believe bulimia is a form of addiction, and I've always said that recovering from bulimia is harder than other substances because food is all around you. If you are a recovering drug addict or alcoholic, alcohol and drugs can be avoided, but you still have to eat food. The trigger is always there.
I'll talk specifically about my recovery in another post, but a life free from anorexia and bulimia was unimaginable. Looking back, they are distant memories and behaviours that seem so alien to me now.

Bulimia can be a very lonely existence. It made me a hermit, and I never really had the guts to tell people around me what was going on. I had no trouble admitting to suffering from anorexia (and it's pretty obvious anyway!) but the bulimia was harder to own up to. Anorexia, in a perverse sort of way represents strength, self-control, denial, focus and willpower, whereas bulimia can be associated with the opposite, and that's difficult to admit to.

I'd maybe see this post as aimed at the layperson who finds the disorder difficult to comprehend, and this is just a little snippet of what it is like. I don't really want to go in to how awful and disgusting bulimia can get, but believe me..it can get pretty disgusting!


Kerry.




Tuesday 21 May 2013

A Profound Moment.

"Your scars have a stronger message than any tattoo".

(Words spoken to me earlier today which blew me away).

Kerry.

The Ludicrous side of Mental Health.. #002

Receiving two marriage proposals whilst in hospital, though I don't know why as I was around 70lbs at the time and looked a total wreck. Obviously it wasn't for my body then...

Saturday 18 May 2013

Mirtazapine Withdrawal - 6 months on..

This weekend makes it six months since I stopped Mirtazapine completely, and I thought it quite fitting that I write some sort of blurb to mark the occasion!
There's not that much info out there on Mirtazapine withdrawal, so I thought I'd reproduce the bulk of the withdrawal diary I kept at the time.
Some of it is pretty boring and repetitive and occasionally there's the odd thing that could be classed as "too much information" which I'll spare you!
The diary did taper off after a while-not much was changing and I was sick of reporting the same things, but it gives you an idea anyway of what it's all about..

Mirtazapine detox Journal. 

Today I was told I can wean myself off my medication - a day I never thought I'd see!
This will be my first night of tapering off the drug and I've to note down all my side effects. It might be nasty. I have to be prepared, but if I keep my end goal in sight - my dream of a medication-free life will be realised!
Wish me luck!

I've cut down from the maximum dose (45mg) to 30mg. I've been on this dose before, so not expecting much..
No trouble falling asleep last night (I was very tired), but I did have vivid and weird dreams. Woke up feeling refreshed.
I'm a bit sleepy now (1.30pm) and could do with a nap. Dry mouth feels slightly better an usual, but I may be imagining things!

14th September.
My night wasn't so great. I had insomnia, and when I eventually did get to sleep I had vivid dreams. My tongue is very itchy. Very weird and unpleasant. It's not anything I haven't had before though..
Bit anxious yesterday, and had to have two naps.
(Evening)
I've been irritable, moody, tearful, emotionally distancing, sarcastic..all PMT related probably. Very lethargic.

15th September.
Vivid dreams again, and the itchy tongue. Mouth is a bit wetter. No toilet trip during the night. A first for a long time!
It's been a surprisingly good day! Camomile Tea seems to work well. I'm very tired physically but not mentally. It may be a long night tonight.

The next few entries carry on in the same vein and include jaw spasms, tongue biting, insomnia and headaches.
Around this time, people were starting to comment that I seemed much more awake and present. Mental and physical stamina were beginning to increase.

21st September.
Slept well last night, but still very tired when I woke. Had a nap at lunchtime. Think I bit my tongue during the night, it's very sore and swollen. I keep having jaw spasms, and my body jerks when resting. No hangover effect. 

22nd September.
Slept well, but nightmares just before I woke up left me disturbed. Mouth a little dry, slight restless legs before I fell asleep. Body twitches and back spasms. I feel tearful and a bit vulnerable to negative thoughts this morning:(
Not noticed any deterioration in my mental health, and mentally I have much more energy. I feel better physically, but am getting a little lethargic with regards to my flat.
I don't want to get in the bath today..not a good sign..

26th September.
Restless legs is really bugging me. It seems to happen if I take my meds too early before I fall asleep. Must experiment with this.
Not getting much sleep..maybe 2 hours the last few nights?
Massive cravings for junk food. Very sleepy and dissociated. Very very tired, and stuck with a sore throat I can't shift. I'll definitely sleep tonight!

Didn't get to sleep until after 3am. In the end I used a hypnosis app on my iPhone. Slept deeply and well.
Had an anxiety attack yesterday. Still anxious today but don't know why.
Getting bouts of restless legs and restless hands and I can't sit still. I'm up in the middle of the night jogging to see if it helps. (A little bit). The veins are swollen on my hands and it feels like they're going to burst, especially when I'm warm.
Now I'm not so thirsty all the time, I keep forgetting to drink - getting dehydrated.

I didn't write again before now as there was nothing new to repeat in wathdrawal symptoms. Just much of the same.
I went down to 22.5mg on 3rd November. In general, I'm full of anxiety - a lot of things are supposed to be happening this month, plus I'm exhausted from the lack of sleep. I'm having great difficulty in staying in the real world. Keep dissociating and hiding away..not good.

I went down to 15mg on 15th November. The review with my consultant went well. She wants me off the drug by the next time I see her. Scary. 
She warned me that the 15mg dose might make me excessively drowsy and told me just to discontinue it if this happens.
Drowsiness kicked in a while ago, and I've spent all of it in bed. I can't do anything. I feel I could fall asleep standing up.
I stopped the drug completely two days ago. The drowsiness is still around though, but I know as time goes on, the insomnia is going to be brutal. It's going to take a long time for my body to adjust, I think.
The magnitude of stopping the drug completely hit me yesterday. It's really scary. Am I doing the right thing? What if I get ill again? Will I need more ECT? I don't think I could take any more.

Thankfully the lethargy is wearing off! But the insomnia is terrible. Last night I had an "illusion" that a plastic bag in my room was actually a cat, and I spent ages trying to shoo it out of my room. Very odd dreams when I do get some sleep.
For the last few days, I've been having the same spiel of music going round and round my head constantly. It's very subtle but really annoying.
I haven't been able to cook, and I'm spending most of my days in bed. Not a depression, but just extreme tiredness.
On the plus-side, I'm beginning to feel more emotions. For a long time, I felt "dead".
Nowhere near as thirsty now, but I keep forgetting to drink. Best of all, my mind is a little clearer!

Yesterday the full withdrawal syndrome kicked in. It's hell. I've totally lost my appetite. That started a few days ago. 
Other things include:
Vertigo and dizzy spells,
Nausea, insomnia,
Flu-like symptoms,
Odd dreams,
Illusions,
Cold sweats,
Anxiety and aggression, 
Electric shocks in my brain,
Repetition of songs in my head,
Lethargy,
Irritability,
Constant low blood sugar,
Stomach cramps,
Diahorrea,
Sleeping a lot.

Thankfully I'm not getting any depressive symptoms!

I phoned my consultant but she wasn't that helpful to be honest. I also phoned my pharmacy who were excellent. She said everything I was describing was "textbook" for Mirtazapine withdrawal.
They told me to consume ginger to relieve the nausea, and to eat a high protein diet as withdrawal does something to the blood sugar if you eat a lot of carbs.

I didn't get up till 5pm today. D__ came by and dropped off lots of high protein snacks. Really nice of him.
I'm concerned about the lack of appetite. If I eat more than a few mouthfuls I feel very sick.

I'm determined to do it though. I must keep my end goal in sight.

Mentally I still feel good. Physically, tired, but yesterday the major itching kicked in. It feels like ants are crawling all over my skin. I've broken the skin on both hands and one leg with my scratching. The sweat is pouring off me and I'm having to change my night clothes several times.
I've only allowed myself to sleep for half an hour today and I'm really hoping tonight I'll get some sleep. Wish me luck!

A pretty shit day. The itching is driving me demented. Still no appetite.
I'm beginning to tire of all of this now. When is it going to get better? I must keep going.

No sleep for days. I feel like a zombie. Today I'm starting to get really pissed off. I had restless legs for hours last night, and I was up, jogging on the spot to try to relieve it. It didn't really work and I spent ages looking up RLS home remedies on the Internet. One suggestion that seems to work is changing the temperature of my legs. I put the electric blanket on, and it worked! I wouldn't wish RLS on my worst enemy. It is pure torture.
I feel very sick today. Lost about a stone in weight. Going to ask the chemist for some build up drinks.
My friend keeps telling me to go back on the drug. That really annoys me. She doesn't realise it's only temporary..


My withdrawal diary ends here. It was pretty much the same story for quite a number of weeks after that. It is all a bit boring, I agree, but it gives you a vague clue as to what it was like..

I hit a really bad depression during the new year, but that was circumstances in my personal life than a chemical thing, plus I'm not a fan of new year at all. Even in the best of times I get very down about it, and look back to my past mistakes rather than looking forward to a better future.

It got to about February when I realised that all of the niggly withdrawal symptoms had gone, eg the itching, the restless legs syndrome, the nausea, the dizziness, the sweats etc.
The lasting problems have been insomnia and loss of appetite, though after 6 months my sleep has finally balanced out. I'd had another bad depression a few weeks ago which made me take to my bed. Again I slept all the time, but having come out the other end, my bad sleep patterns have suddenly been restored.
Valerian tea is also great for sleep, but quite potent! Beware if you have a cat - it will go crazy trying to get into the tea box! (I later read that the tea has the same smell as cat pee, and the same effect as Catnip). Pretty amusing to watch!

My appetite is another thing. It's still non-existent. I saw my doctor the other day about it and she said an option was to go back on the medication. No Way! The alternative was to put me on steroids which she said would cause more problems than any therapeutic benefit. I've been told to just eat regularly, get into a routine, and supplement my diet with protein/vitamin shakes. 

As I've said in other posts, increased anxiety has been prominent since coming off the drug. It does pull me down sometimes, and I get sick of it. I'm trying to use this time to explore relaxation methods and see it all as a challenge, but that's not always easy!
Just got to soldier on and hope that in a few months, things will have sorted themselves out.

I may write a follow-up post in 3-6 months' time. 

Kerry.

Thursday 16 May 2013

A good old moan.

Everybody has crap days. A day when you're knackered, depressed and feeling sorry for yourself. That's me today. So..beware! A very rambling, negative post from me just having a "good old moan."
(And no! I'm not suicidal..although by the time you've finished reading this, you might be feeling that way!)

Today is one of those days where I feel really old. I think my partner must think I'm a bit odd, after all, I'm supposed to be "better" and out of the mental health system now. We've recently moved in together and he has not really seen this side of me. I used to bolt off home when I felt those days coming. It's not normal for someone in their middle thirties to have so little energy, or to have huge physical crashes every week, or to get frequent crying episodes for no reason. Unfortunately this is normal for me. And I hate it. Mind you, I don't feel as bad as I did when I was anorexic..but then there was a reason for all my tiredness.

These days come and go. I usually perk up by the evening and back to my normal self again. But sometimes, these days can turn in to weeks..

There are days when I don't want to get in to the shower in the morning. Normally I love my showers and find them very relaxing, but the days I don't want one..somehow those days are days like today.

I have a weird aversion to water when depressed. I don't know what it is...probably the effort of having to get dried and all that..plus I hate the feel of water on my skin when I'm like this.
There's been a few major life changes recently and those have caused a lot of stress. I'm not great at dealing with stress (or change) and if I don't act on it I virtually become mentally and physically paralysed by all the things that have built up.

Every day is a struggle of some sorts for me. Often..okay Constantly, I'm riddled with anxiety, or self-doubt, or feelings of inferiority, or the physical side of things where you're just too damn tired to do anything useful.

There will be the occasional glimpse in to paradise when there is the day it is so easy to live. Everything goes well. You experience wonder in everything that you see and you feel you can achieve anything you want to. Everything suddenly fits in to place. This in itself is torture. You get a glimpse of heaven and then the door is slammed shut.

Yeah yeah..I don't see mental health doctors anymore, but that means diddly squat. They have no need to see me now that I am not on medication. I know I will never be fully free from my depressions..just to learn to deal with them better..

Often I get tired of fighting. Being alive shouldn't be this hard should it? 

Moan over.

Kerry.